RBDA TeleECHO

Rare Bone Disease TeleECHO Clinic Series

Presented by the OI Foundation in partnership with the Rare Bone Disease Alliance.

This series uses Zoom videoconferencing and takes place on the first Thursday of every month at 3pm EST. In each monthly session, faculty members or guest speakers present a brief didactic presentation, followed by participant-led case presentations and group discussion of the presented cases. The faculty encourages participants to present case studies related to rare bone diseases at each session.

The goal of this educational program, a partnership with Project ECHO™ (Extension for Community Healthcare Outcomes), is to build capacity to safely and effectively diagnose and treat osteogenesis imperfecta (OI).

The full schedule with links to register for specific session topics is listed below. Participants can also sign up to receive program reminders and updates here.

The interdisciplinary faculty in the Rare Bone Disease TeleECHO includes:

• Laura Tosi, MD (Head Faculty) Children’s National Health System
• Michael Collins, MD National Institutes of Health, NIDCR
• Michael Lewiecki, MD University of New Mexico
• Frank Rauch, MD Shriners Hospital for Children – Canada
• Eric Rush, MD University of Kansas Hospital
• Carlos Ferreira, MD National Institutes of Health, NHGRI
• Dolores Shoback, MD University of California San Francisco
• Michael Whyte, MD Washington University in St. Louis

UPCOMING ECHO SESSIONS PAST ECHO SESSIONS

CME Accreditation Statement

In support of improving patient care, this activity has been planned and implemented by the Osteogenesis Imperfecta Foundation and Project ECHO. Project ECHO® is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC), to provide continuing education for the healthcare team.

AMA Designation Statement

Project ECHO® designates this live activity for a maximum of 1.5 AMA PRA Category 1 Credits™.  Physicians should claim only the credit commensurate with the extent of their participation in the activity.

Sample Agenda for 2025-2026 Rare Bone Disease TeleECHO Clinic Series

Time Agenda Item

3:00-3:05	Housekeeping announcements and Speaker introduction
3:05-3:45	Main Presentation
3:45-4:00	Q&A for Main Presentation
4:00-4:15	Case Presentation #1 and Group Discussion
4:15-4:30	Case Presentation #2 and Group Discussion

YEAR 7 PROGRAM SCHEDULE

08/07/2025	Stickler’s Syndrome Geert Mortier, MD, PhD
09/11/2025	Pulmonary Aspects of Osteogenesis Imperfecta Sandy Sandhaus, MD, PhD
10/02/2025	Maternal Mineral and Bone Metabolism During Pregnancy, Lactation, and Post-Weaning Christopher Kovacs, MD, FRCPC, FACP, FACE, FASBMR
11/06/2025	Heritable Non-OI Forms of Osteoporosis Outi Mäkitie, MD, PhD
12/04/2025	The Impact of Monoclonal Gammopathies on Bone Health Matthew Drake, MD, PhD
01/08/2026	Canarsie Engelman diseases Michael Whyte, MD
02/05/2026	OPPG or Skeletal Dysplasias in the Plain Community Grace Loudon Meier, MD
03/05/2026	Skeletal Manifestations of Gaucher Disease Derralynn Hughes, MD
04/02/2026	Precision Medicine Modeling of New Skeletal Disorders Lindsay Burrage, MD, PhD
05/07/2026	TBD
06/04/2026	Osteoblast-Driven High Bone Mass Diseases Natasha Appelman-Dijkstra, MD, PhD