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  • Metabolic and rare bone disease conference

    Washington, DC Metabolic & Rare Bone Disease Club Dinner September

    Pooks Hill Marriott 5151 Pooks Hill Rd, Bethesda, MD, United States

    Join the Washington, DC Metabolic & Rare Bone Disease Club on September 11, 2025 for the third in a series of quarterly dinners focused on new developments in research, diagnosis, and treatment of metabolic and rare bone disorders. Charles P. McKay, MD  Pediatric Nephrologist,  Atrium Health, Carolinas Medical Center and Atrium Health-University City Robin K.…

  • RBD ECHO: Maternal Mineral and Bone Metabolism During Pregnancy, Lactation, and Post-Weaning

    Maternal Mineral and Bone Metabolism During Pregnancy, Lactation, and Post-Weaning  Christopher Kovacs, MD, FRCPC, FACP, FACE, FASBMR. University Research Professor, Faculty of Medicine - Endocrinology, Health Sciences Centre, Memorial University of Newfoundland, Canada, CLICK HERE TO REGISTER TO ATTEND The Rare Bone Disease TeleECHO Clinic Series is a medical educational program, a partnership with Project…

  • OI Research Grant Opportunity – Applications Due

    Research Grant Opportunity! The Michael Geisman Fellowship Grant program awards funding to post-doctoral trainees who are currently working on projects with clear relevance to osteogenesis imperfecta (OI), or who have projects that will enable them to develop expertise in OI research. Learn more and apply today at https://oif.org/research-grants

  • 2025 Annual Maher Family Research Grant – Applications Due

    ​​​​​​​Calling all researchers, faculty members, senior postdoctoral trainees, and research associates, Soft Bones Inc., The US Hypophosphatasia Foundation, is now accepting applications for the 2025 Annual Maher Family Research Grant. We are interested in promoting the development of innovative research by new and established investigators by offering a $25,000 seed grant for research that is directly related to…

  • RBD ECHO: Heritable Non-OI Forms of Osteoporosis

    Heritable Non-OI Forms of Osteoporosis Outi Mäkitie, MD PhD Professor of Pediatric Endocrinology, Children’s Hospital, University of Helsinki and Helsinki University Hospital, Helsinki, Finland Folkhälsan Research Center, Helsinki, Finland CLICK HERE TO REGISTER TO ATTEND The Rare Bone Disease TeleECHO Clinic Series is a medical educational program, a partnership with Project ECHO™ (Extension for Community…

  • Washington, DC Metabolic & Rare Bone Disease Club Dinner November

    Pooks Hill Marriott 5151 Pooks Hill Rd, Bethesda, MD, United States

    Join fellow Washington, DC area endocrinologists, rheumatologists, geneticists and orthopaedic surgeons for a multi-disciplinary dinner meeting held every quarter and focused on new developments in research, diagnosis, and treatment of metabolic and rare bone disorders. The November 13th session will feature Dr. Pedro A. Sanchez-Lara speaking on Achondroplasia presented by BioMarin.

  • RBD ECHO: The Impact of Monoclonal Gammopathies on Bone Health

    The Impact of Monoclonal Gammopathies on Bone Health Matthew Drake, MD, PhD Chief, Endocrinology and Metabolic Bone Service, Endocrinology and Metabolic Bone Physician Hospital for Special Surgery (HSS), New York City CLICK HERE TO REGISTER TO ATTEND The Rare Bone Disease TeleECHO Clinic Series is a medical educational program, a partnership with Project ECHO™ (Extension…

  • RBD ECHO: Canarsie Engelman Diseases

    Canarsie Engelman Diseases Michael Whyte, MD Professor Emeritus of Medicine, Pediatrics and Genetics; Former Director, Center for Metabolic Bone Disease and Molecular Research, Shriners Hospitals for Children – St. Louis, Washington University School of Medicine CLICK HERE TO REGISTER TO ATTEND The Rare Bone Disease TeleECHO Clinic Series is a medical educational program, a partnership…

  • RBD ECHO: OPPG or Skeletal Dysplasias in the Plain Community

    OPPG or Skeletal Dysplasias in the Plain Community Grace Loudon Meier, MD Family Medicine Physician; Director of Adult Services Program Clinic for Special Children, Pennsylvania CLICK HERE TO REGISTER TO ATTEND The Rare Bone Disease TeleECHO Clinic Series is a medical educational program, a partnership with Project ECHO™ (Extension for Community Healthcare Outcomes), focused on…

  • RBD ECHO: Skeletal Manifestations of Gaucher Disease

    Skeletal Manifestations of Gaucher Disease Derralynn Hughes, MBBS, PhD Professor of Experimental Haematology; Clinical Director of Haematology, Oncology & Palliative Care; Lead Cancer Physician University College London & Royal Free London NHS Foundation Trust, UK CLICK HERE TO REGISTER TO ATTEND The Rare Bone Disease TeleECHO Clinic Series is a medical educational program, a partnership…

  • RBD ECHO: Precision Medicine Modeling of New Skeletal Disorders

    Precision Medicine Modeling of New Skeletal Disorders Lindsay C. Burrage, MD, PhD Associate Professor, Department of Molecular and Human Genetics; Attending Physician, Inborn Errors of Metabolism & Skeletal Dysplasia Clinics, Baylor College of Medicine CLICK HERE TO REGISTER TO ATTEND The Rare Bone Disease TeleECHO Clinic Series is a medical educational program, a partnership with…

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